|Spotlight: Phyllis Zachery-Thomas (you may know her as przthomas)
Website: AGASCA & SCD Soldiers
Occupation: Retired accountant
How did you get started in the Sickle Cell Disease Community online?
After starting my own personal facebook page, I decided to start a page for the Advocacy Group for Adults with Sickle Cell Anemia (AGASCA). I created AGASCA as an offline support group in my home town of Dallas after meeting several people who were in the hospital at the same time that I was. It wasn’t officially established as a non-profite, but that’s where I saw it going. After moving to Atlanta, I felt the Facebook page was a great way to stay in touch with the people in the original group, as well as a way to reach out to others all over the nation via the internet.
When you think of the future of the kind of work you’re doing with SCD Soldiers, what gives you a sense of hope?
There has been so many adults who suffer with SCD that feel as though they haven’t been properly represented or served in a way that is beneficial. My mission of offering that kind of support makes me hopeful, because I know that if the services are established they will be utilzed.
Be sure to check out Phyllis’s WEGO Health Profile and welcome her to the community!